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Foundation News

MEF2C Community Roundup: Fundraising, Registry Growth and Global Awareness

While scientific breakthroughs often capture the headlines, they rarely happen in isolation.

2026-06-13

Foundation News

From Sydney to New York: MEF2C Foundation Australia Leads the Global Charge

MEF2C Foundation Australia is at the frontline of the Volare Study, the first longitudinal natural history study for MCHS.

2026-06-09

Foundation News

Milestone Numbers: US MEF2C Foundation Registry Reaches 170 Patients

The US MEF2C Foundation has reached a critical data threshold, with 170 patients now registered in the foundation's registry. This growing longitudinal dataset is fueling the path toward human clinical trials for MEF2C Haploinsufficiency Syndrome.

2026-06-08